Out-of-pocket healthcare expenditures of Turkish households living with rare diseases

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dc.authoridOGUZHAN/0000-0002-3231-2389
dc.contributor.authorKockaya, Guvenc
dc.contributor.authorOguzhan, Gulpembe
dc.contributor.authorOkcun, Selin
dc.contributor.authorKurnaz, Mustafa
dc.date.accessioned2025-03-17T12:25:18Z
dc.date.available2025-03-17T12:25:18Z
dc.date.issued2023
dc.departmentTarsus Üniversitesi
dc.description.abstractIntroductionThis study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing. MethodsThe research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated. ResultsA total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be L22,743 (euro2,877). A significant relationship was found between income status and out-of-pocket health expenditures (p = 0.012). DiscussionPolicy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken.
dc.identifier.doi10.3389/fpubh.2023.1051851
dc.identifier.issn2296-2565
dc.identifier.pmid36935729
dc.identifier.scopus2-s2.0-85150452050
dc.identifier.scopusqualityQ2
dc.identifier.urihttps://doi.org/10.3389/fpubh.2023.1051851
dc.identifier.urihttps://hdl.handle.net/20.500.13099/1603
dc.identifier.volume11
dc.identifier.wosWOS:000949275800001
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherFrontiers Media Sa
dc.relation.ispartofFrontiers in Public Health
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/openAccess
dc.snmzKA_WOS_20250316
dc.subjecthealth expenditure
dc.subjectrare disease
dc.subjectTurkey
dc.subjecthousehold
dc.subjectout-of-pocket
dc.titleOut-of-pocket healthcare expenditures of Turkish households living with rare diseases
dc.typeArticle

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