Out-of-pocket healthcare expenditures of Turkish households living with rare diseases
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Tarih
2023
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
Frontiers Media Sa
Erişim Hakkı
info:eu-repo/semantics/openAccess
Özet
IntroductionThis study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing. MethodsThe research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated. ResultsA total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be L22,743 (euro2,877). A significant relationship was found between income status and out-of-pocket health expenditures (p = 0.012). DiscussionPolicy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken.
Açıklama
Anahtar Kelimeler
health expenditure, rare disease, Turkey, household, out-of-pocket
Kaynak
Frontiers in Public Health
WoS Q Değeri
Q2
Scopus Q Değeri
Q2
Cilt
11
