Emotions and difficulties experienced by parents of children with autism: A qualitative study

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dc.authoridSonmez Duzkaya, Duygu/0000-0002-1815-8821
dc.authoridKARAKUL, Atiye/0000-0001-6580-9976
dc.authorid, gulzade/0000-0002-1019-852X
dc.contributor.authorUysal, Gulzade
dc.contributor.authorKarakul, Atiye
dc.contributor.authorDuzkaya, Duygu Sonmez
dc.date.accessioned2025-03-17T12:25:36Z
dc.date.available2025-03-17T12:25:36Z
dc.date.issued2024
dc.departmentTarsus Üniversitesi
dc.description.abstractRationaleThis study was performed to determine the difficulties experienced by the parents of children with autism.MethodsA qualitative method was used to determine the difficulties experienced by the parents. The sample of the study consisted of parents with 24 children with autism who met the inclusion criteria. The data were analysed by the MAXQDA qualitative data analysis programme in accordance with Colaizzi's seven-stage method.ResultsTotal of 5 themes and 29 codes were gathered in line with the data obtained from the interviews. Five main themes of the interviews emerged; emotions experienced by parents; adaptation to family life; difficulty in social relationships; limited opportunity for entertainment/activity and financial difficulty. Parents whose income were less than or equal to their expenses particularly stated that they had economic difficulties in the transportation of their children to places such as hospitals/schools/special education.ConclusionIn accordance with the findings of this study, it was determined that almost all of the parents with a child diagnosed with autism experienced sadness, denial, shock, depression, self-blame in the period when their children were first diagnosed, and later accepted the disease. In addition, it was detected that parents had difficulties in family relations, social relations, entertainment/activity and economic aspects.
dc.identifier.doi10.1111/jep.14207
dc.identifier.issn1356-1294
dc.identifier.issn1365-2753
dc.identifier.pmid39440802
dc.identifier.scopus2-s2.0-85207286006
dc.identifier.scopusqualityQ1
dc.identifier.urihttps://doi.org/10.1111/jep.14207
dc.identifier.urihttps://hdl.handle.net/20.500.13099/1777
dc.identifier.wosWOS:001338430500001
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherWiley
dc.relation.ispartofJournal of Evaluation in Clinical Practice
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_WOS_20250316
dc.subjectautism
dc.subjectexperience
dc.subjectparent
dc.subjectqualitative
dc.titleEmotions and difficulties experienced by parents of children with autism: A qualitative study
dc.typeArticle

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