The experiences of parents of children in pediatric palliative care: A qualitative study

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dc.authoridARDAHAN AKGUL, ESRA/0000-0003-3124-5679
dc.contributor.authorKarakul, Atiye
dc.contributor.authorKiratli, Didem
dc.contributor.authorAkgul, Esra Ardahan
dc.contributor.authorCelik, Tanju
dc.date.accessioned2025-03-17T12:26:00Z
dc.date.available2025-03-17T12:26:00Z
dc.date.issued2022
dc.departmentTarsus Üniversitesi
dc.description.abstractPurpose: This study aims to better understand the experiences of mothers of children receiving pediatric pallia-tive care.Design and methods: The qualitative phenomenological method was used to determine the mothers' experiences. The study sample included 15 mothers. Individual interviews, an introductory information form and a semi -structured interview form were used for data collection. The data were analyzed with Colaizzi's seven-step method. MAXQDA was used for coding and creating themes.Results: Three main themes of the interviews emerged; family experiences, social life and care in the palliative care unit. The mothers said that family relationships were affected, that they experience fear of loss, that they ex-perience depression, that all responsibility for treatment and care lies with the mothers, and that there is no social support. Mothers said that they are in the same place as mothers of children in similar situations and that they are happy and comfortable because they have single rooms. In addition, the mothers stated that they are very afraid of the COVID-19 virus infecting their children and therefore losing their children.Conclusions: The mothers experienced some problems such as fear of loss, depression, care burden, social support, exclusion, daily life, social relationships, feeling safe, and emotional effect. Practice implications: Pediatric nurses need to understand mothers' anxiety, grief, relationships with their children, and coping strategies to provide support.(c) 2022 Elsevier Inc. All rights reserved.
dc.identifier.doi10.1016/j.pedn.2022.08.015
dc.identifier.endpage115
dc.identifier.issn0882-5963
dc.identifier.pmid36087413
dc.identifier.scopus2-s2.0-85137397417
dc.identifier.scopusqualityQ1
dc.identifier.startpage107
dc.identifier.urihttps://doi.org/10.1016/j.pedn.2022.08.015
dc.identifier.urihttps://hdl.handle.net/20.500.13099/1986
dc.identifier.volume67
dc.identifier.wosWOS:000869188900004
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherElsevier Science Inc
dc.relation.ispartofJournal of Pediatric Nursing-Nursing Care of Children & Families
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_WOS_20250316
dc.subjectExperience
dc.subjectMothers
dc.subjectPediatric palliative care
dc.subjectQualitative study
dc.titleThe experiences of parents of children in pediatric palliative care: A qualitative study
dc.typeArticle

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