Determining the Difficulties of Parents with Children in Home Care Who Were Discharged from Intensive Care

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dc.contributor.authorBozkurt, Gulcin
dc.contributor.authorDuzkaya, Duygu Sonmez
dc.contributor.authorUysal, Gulzade
dc.contributor.authorYakut, Tulay
dc.contributor.authorKarakul, Atiye
dc.date.accessioned2025-03-17T12:25:11Z
dc.date.available2025-03-17T12:25:11Z
dc.date.issued2024
dc.departmentTarsus Üniversitesi
dc.description.abstractIntroduction: This study was performed to determine the difficulties experienced by parents with children in home care who were discharged from intensive care. Methods: A phenomenological qualitative method was used to determine the difficulties experienced by the parents. The sample of the study consisted of parents (n=22) whose children met the inclusion criteria and needed home care. The data were analyzed in the MAXQDA qualitative data analysis program in accordance with Colaizzi's seven-stage method. Results: The average age of the children in the study group was 85.63 +/- 58.40 months. 56.7% of them were male. 40% of the children were followed up with a diagnosis of neurological disease. All children discharged from the intensive care unit had tracheostomy. 95.4% of them used home-type mechanical ventilators, and 95.3% were fed enterally. In line with the data obtained from the interviews of the parents, it was determined that there were difficulties in terms of feelings about discharge, physical conditions for home care, family relationship, social relationship, difficulty in physical care, inadequacy in support systems and financial status. Conclusion: The home care of children, who are dependent on medical technology and discharged from intensive care, is mostly performed by their families. Children dependent on medical technology should be supported by home care personnel to avoid potential risks.
dc.description.sponsorshipAcknowledgment: We wish to thank the parents of children with autism for their assistance in this study by helping with data collection, and Mr. David F. Chapman for editing the manuscript.
dc.identifier.doi10.4274/cayd.galenos.2024.94546
dc.identifier.endpage106
dc.identifier.issn2717-9206
dc.identifier.issue2
dc.identifier.scopus2-s2.0-85202517111
dc.identifier.scopusqualityQ4
dc.identifier.startpage97
dc.identifier.trdizinid1274950
dc.identifier.urihttps://doi.org/10.4274/cayd.galenos.2024.94546
dc.identifier.urihttps://search.trdizin.gov.tr/tr/yayin/detay/1274950
dc.identifier.urihttps://hdl.handle.net/20.500.13099/1529
dc.identifier.volume11
dc.identifier.wosWOS:001284035000003
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakTR-Dizin
dc.language.isoen
dc.publisherGalenos Publ House
dc.relation.ispartofJournal of Pediatric Emergency and Intensive Care Medicine
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/openAccess
dc.snmzKA_WOS_20250316
dc.subjectHome care
dc.subjectchild
dc.subjectintensive care
dc.titleDetermining the Difficulties of Parents with Children in Home Care Who Were Discharged from Intensive Care
dc.typeArticle

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